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danny71

Any advice would be helpful. I'm frightened

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danny71

Hi all. I have had some terrifying experiences lately. First a little backstory. I have been on Benzos for about 25 years. I had bad panic attacks in the 90s and Doctors were handing them out like candy back then. My body quickly gets used to them so they maxed me out at 2mg 4x daily of xanax. My Doctor passed away about 3 years ago so I searched everywhere and finally found one that put me on Kpins at only 1mg 3 xdaily.

I cannot get used to this low dose. I have been having constant anxiety and insomnia for years now. My Doctor does nothing. He is a Psychiatrist and has never heard of P.A.W.s. I am not sure that is what I have but it would be nice to have a Doc that would look into it instead of just giving me Gabapentin ( which I admit, did help me sleep). Now he is taking me off those because he said the FDA is Scheduling those.

OK, now for my big problem. Sometimes I will go two or three days without sleep because of this. Now this has been happening for years and of course I would be tired and cranky, but that is it. The last 4 times I have gone without sleep, by the third day I will go into a Psychotic episode. I cannot function well enough to use my phone. If the house caught fire I would probably run into my room instead of leaving the house (the corner of my bedroom becomes a safe-zone, I know it makes no sense). I forget to eat and drink fluids. I think things are happening that are not. After one night of sleep this all goes away. I become "normal" again.

I cannot take anti-psychotics, I developed an extreme case of Tardive Dyskinesia once while in a detox unit. They gave me those while trying to detox from xanax. I wasn't having any psychotic symptoms so I assume this was a preventative measure. I had to be rushed to the E.R, they rolled the crash cart in there, pumped me full of benedryl, it was really bad but thank god it went away when the antihistamine kicked in. I was told never to take an anti-psychotic again, including Phenergren.

I do not think I need them anyway since sleep gets rid of the problem. I have not even discussed this with my Doctor b/c I know he would probably just try to up my dose of Prozac (every problem I have, he just ups my Prozac). He will not prescribe a sleeping pill, nor will he up my dose of Kpins, even though my body hasn't gotten used to the smaller dose.

I do not have an addiction specialist in my area. I am truly terrified of slipping into a psychotic state and not returning. I feel alone and helpless. I have a great husband but this really scares him when this happens to me. He has to go to work and is afraid to leave me alone. He caught me pouring myself a glass of Pine-sol that I thought was apple juice so he tries to "baby Proof" the house before he leaves for work.

BTW I did go to the E.R once and they told me to get some sleep and not let this happen?! I do not stay up on purpose. I do not use any stims. They gave me 2 Mgs of Ativan and sent me home as bad as when I came in.

I am sorry for the long post. Does anyone have any suggestions or thoughts on what I could take to sleep, or what is wrong with me? Why is this happening now? Any advice or opinions are welcome. Thank you in advance!

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Ipon

@danny71 Such a familiar story. Many of us are in the same boat. Myself included. I can't give you medical advice but, In my case when I was cut off of b3nz0z for no reason whatsoever. I sought help from five doctors and none of them would help me so, I simply help myself by getting what I need to match the routine I was on when I used to have a doctor who didn't want to see me suffer.

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danny71
10 hours ago, Ipon said:

@danny71 Such a familiar story. Many of us are in the same boat. Myself included. I can't give you medical advice but, In my case when I was cut off of b3nz0z for no reason whatsoever. I sought help from five doctors and none of them would help me so, I simply help myself by getting what I need to match the routine I was on when I used to have a doctor who didn't want to see me suffer.

Thanks for replying. It is really terrible what they are putting people through. I have several friends who have chronic pain and they seem to have it even worse. One friend who had been in an accident at work several years ago had severe chronic pain in his leg. His Doctor controlled it with pain patches. Then he was cut off and put on Tr@mad0l. His pain was so bad for over a year that he just had his leg amputated below the knee. When he was on pain patches he led a fairly normal life and was able to hold down a job. Now he is on temporary disability, and medicaid will not pay for a prosthetic leg. You are correct, there are so many stories and it is all for nothing,

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Jacob Jashers
On 7/26/2019 at 11:43 AM, danny71 said:

Hi all. I have had some terrifying experiences lately. First a little backstory. I have been on Benzos for about 25 years. I had bad panic attacks in the 90s and Doctors were handing them out like candy back then. My body quickly gets used to them so they maxed me out at 2mg 4x daily of xanax. My Doctor passed away about 3 years ago so I searched everywhere and finally found one that put me on Kpins at only 1mg 3 xdaily.

I cannot get used to this low dose. I have been having constant anxiety and insomnia for years now. My Doctor does nothing. He is a Psychiatrist and has never heard of P.A.W.s. I am not sure that is what I have but it would be nice to have a Doc that would look into it instead of just giving me Gabapentin ( which I admit, did help me sleep). Now he is taking me off those because he said the FDA is Scheduling those.

OK, now for my big problem. Sometimes I will go two or three days without sleep because of this. Now this has been happening for years and of course I would be tired and cranky, but that is it. The last 4 times I have gone without sleep, by the third day I will go into a Psychotic episode. I cannot function well enough to use my phone. If the house caught fire I would probably run into my room instead of leaving the house (the corner of my bedroom becomes a safe-zone, I know it makes no sense). I forget to eat and drink fluids. I think things are happening that are not. After one night of sleep this all goes away. I become "normal" again.

I cannot take anti-psychotics, I developed an extreme case of Tardive Dyskinesia once while in a detox unit. They gave me those while trying to detox from xanax. I wasn't having any psychotic symptoms so I assume this was a preventative measure. I had to be rushed to the E.R, they rolled the crash cart in there, pumped me full of benedryl, it was really bad but thank god it went away when the antihistamine kicked in. I was told never to take an anti-psychotic again, including Phenergren.

I do not think I need them anyway since sleep gets rid of the problem. I have not even discussed this with my Doctor b/c I know he would probably just try to up my dose of Prozac (every problem I have, he just ups my Prozac). He will not prescribe a sleeping pill, nor will he up my dose of Kpins, even though my body hasn't gotten used to the smaller dose.

I do not have an addiction specialist in my area. I am truly terrified of slipping into a psychotic state and not returning. I feel alone and helpless. I have a great husband but this really scares him when this happens to me. He has to go to work and is afraid to leave me alone. He caught me pouring myself a glass of Pine-sol that I thought was apple juice so he tries to "baby Proof" the house before he leaves for work.

BTW I did go to the E.R once and they told me to get some sleep and not let this happen?! I do not stay up on purpose. I do not use any stims. They gave me 2 Mgs of Ativan and sent me home as bad as when I came in.

I am sorry for the long post. Does anyone have any suggestions or thoughts on what I could take to sleep, or what is wrong with me? Why is this happening now? Any advice or opinions are welcome. Thank you in advance!

He hasn’t heard of P.A.W.S., that’s ridiculous, Dr.’s are supposed to keep up with all the medical journals so they don’t fall behind everyone else who follows the research and P.A.W.S. isn’t a new thing , a rare thing or open to debate weather it’s real or not , it’s a actual thing. I feel for you brother I lost a 4mg of klonopin script once well it started with Xanax , wasn’t a big fan , ended up getting 10mg. of k pins a day but was fine at 4 when I lost them. You can rarely sleep, never sleep well, and people at work see the bags under your eyes and joke about it. 4 measly mg.’s is all I need 2 upon waking , and 2 after work. These new dr.’s and all their bs drive me crazy. They’re overqualified pill pushers and they only push the pills they’re told to by the pharmaceutical rep who gives them a cut. There no money in prescribing benzos even though that’s all some peoples need to function totally normal in life. Have a job , take care of the kids etc. I feel for you because I’ve been there. Etiz and a few others for sleep. Etiz will put you to sleep and you’ll wake up happy. There’s others , I’ve seen zolpiclone sold in powder . 15 mg. Will make you sleep great, but etiz has you waking up happy to start the day. 

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INeedsMyDrugz

Danny,

Allright. Have you taken melatonin? You can get it otc most places. It is the very best in helping sleep. If they had this out when I started benz I would have not ever taken benz. 

Also, for a mild start in the eve try some Valerian root pilz...very relaxing. And there is combination of these herbs in bottles that say 'sleep' solution. They are all great! I know that coming off or changing meds causes probs that may not allow anything to work well for a time, but the long solution are these.

I try to take only 3mg of melatonin a night but I often double that for a time. You can safely take 10mg. 

I do take 1mg of xan with that, as well as 300mg of gaba script so yah I am not fully just relying on otc - I wish! so I do understand your situation. But if you start a low'ish amount of melatonin or similar, then if you get off the scripts you just up the melatonin. There you are. Hope this helps.

YOU GOT TO SLEEP!

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danny71
On 8/4/2019 at 2:56 PM, Jacob Jashers said:

He hasn’t heard of P.A.W.S., that’s ridiculous, Dr.’s are supposed to keep up with all the medical journals so they don’t fall behind everyone else who follows the research and P.A.W.S. isn’t a new thing , a rare thing or open to debate weather it’s real or not , it’s a actual thing. I feel for you brother I lost a 4mg of klonopin script once well it started with Xanax , wasn’t a big fan , ended up getting 10mg. of k pins a day but was fine at 4 when I lost them. You can rarely sleep, never sleep well, and people at work see the bags under your eyes and joke about it. 4 measly mg.’s is all I need 2 upon waking , and 2 after work. These new dr.’s and all their bs drive me crazy. They’re overqualified pill pushers and they only push the pills they’re told to by the pharmaceutical rep who gives them a cut. There no money in prescribing benzos even though that’s all some peoples need to function totally normal in life. Have a job , take care of the kids etc. I feel for you because I’ve been there. Etiz and a few others for sleep. Etiz will put you to sleep and you’ll wake up happy. There’s others , I’ve seen zolpiclone sold in powder . 15 mg. Will make you sleep great, but etiz has you waking up happy to start the day. 

IKR- Either that or he is ignoring it. I am sure he is probably required to give the least amount of care possible. I have to go to a Native American Hospital. It could be just me but everyone who walks in there is looked at like a useless Indian addict. My bro had severe pain in his shoulder pain, once he got in there he found out he had a torn rotater cuff. He was give rub on muscle cream and sent home. Bunch of B.S.

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